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Original courtesy of Wikipedia: http://en.wikipedia.org/wiki/Parry-Romberg_syndrome — Please support Wikipedia.
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460 videos foundNext > 

Lucy's Story: Parry-Romberg Syndrome

When Lucy was born her mother noticed immediately it looked like she had a persistent red rash on her face. Lucy was diagnosed with Parry-Romberg ...

Parry Romberg-My Story

My Story of my life with Parry Romberg syndrome. As well as details of surgeries :) I hope this helps to raise the awareness. Xxx.

5 of the worlds weirdest diseases!

There are some weird things in this world. This time its about weird diseases. -Parry Romberg syndrome -Progeria -Hypertrichosis -Argyria -Elephantiasis These ...

Early Surgery Helps Young Girl with Parry Romberg Syndrome

UW Health surgeon John Siebert used Christine Honeycutt's healthy tissue to replace facial tissue damaged by Parry Romberg syndrome, a rare autoimmune ...

Parry Romberg Syndrome #2

Dr. Kongkrit Chaiyasate, MD performed a facial reconstruction with free scapula flap in a 10 year old boy with Parry Romberg syndrome (Hemifacial Atrophy).

Parry Romberg Syndrome Treatment with Dallas Plastic and Craniofacial Surgeon Dr. David Genecov

http://bestdocsnetwork.com/dallas-and-fort-worth/david-genecov/ Dallas Craniofacial Surgeon Dr. David Genecov discusses a particular craniofacial disorder ...

Parry–Romberg syndrome (Medical Condition)

Symptoms, risk factors and treatments of Parry–Romberg syndrome (Medical Condition) Parry–Romberg syndrome is a rare neurocutaneous syndrome ...

Parry Romberg Syndrome - Lucy's wish update

Lucy has Parry Romberg Syndrome and is on her way to America for life changing surgery with Dr John Siebert thanks to some generous donations. Follow ...

The story of my life [Parry Romberg]~Esmeralda Alaniz

I wanted to share the story of my life when I was diagnosed with a rare sydrome called parry romberg at age 13. Unfortunately, due to my second surgery I can't ...

Parry Romberg Syndrome - Lucy

Lucy suffers from Parry Romberg Syndrome. Follow Lucy on face book www.facebook.com/LucysChampionsForHope.

460 videos foundNext > 

41 news items

ABC News
Tue, 01 Mar 2011 05:47:50 -0800

After a visit to another pediatrician, numerous tests and then a consultation with a genetic specialist the pediatrician recommended, Honeycutt had a diagnosis: Parry-Romberg Syndrome, a rare condition that progressively causes the skin and tissue of ...
Fri, 25 Feb 2011 05:41:07 -0800

In 2008, two and a half years after the line first appeared on Christine's face, a geneticist who specializes in facial deformities finally diagnosed her with Parry-Romberg syndrome, an extremely rare autoimmune disorder that affects roughly one in a ...

Daily Mail

Daily Mail
Mon, 29 Jun 2015 06:34:49 -0700

Yasmin Butler, now 22, (pictured left aged four, and right at 17) was diagnosed with the very rare Parry-Romberg syndrome, after suffering a freak accident when she was seven years old. The condition is characterised by slowly progressive deterioration ...
The Stir (blog)
Fri, 25 Feb 2011 11:39:40 -0800

hiding face Parents and doctors are both doing the happy dance today. Scientists seem to have found a way to treat Parry-Romberg syndrome, a rare childhood disease that can take your normal kid's face and make it seemingly melt away. The autoimmune ...


Sat, 27 Jun 2015 15:12:10 -0700

But it wasn't until Yasmin turned nine that she was finally diagnosed with Parry Romberg syndrome. The disorder, which affects only 500 people in the world and had been triggered by her accidents, causes progressive degeneration of tissues beneath the ...

BBC News

BBC News
Thu, 02 Jul 2015 06:30:00 -0700

As a child, Yasmin Butler from Hastings was accidentally hit in the head, by a toy and a swing, which caused the left side of her face to collapse due to a rare condition called Parry Romberg syndrome. But now, after reconstructive surgery in East ...


Thu, 16 Apr 2015 20:33:45 -0700

A Croatian family staying at the Ronald McDonald House in Madison felt a little more at home today, thanks to a visit from UW basketball player Duje Dukan. 11-year-old Marijeta has Parry-Romberg syndrome, a rare autoimmune disease. She's spent the last ...
Business Gazette
Thu, 26 Nov 2009 01:45:00 -0800

Nichole Beavers, 19, will be featured on "Mystery Diagnosis" on the Discovery Health network. Beavers suffers from a rare disorder called Parry Romberg syndrome, which causes slow degeneration of the face. On Friday, she pulled out research material ...

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